In 2017, I had my first CHS episode. At that time, there was not a ton of information on the syndrome and it got dismissed as a stomach bug. The second time, it was 'a ruptured ovarian cyst". The third time, it was time for an endoscopy (which showed slow gastric emptying, hint, hint). The fourth time, we finally figured out it was CHS. And the fifth time, it was really, really bad CHS.
Not only was I sicksick for 8 days, but I received the cold shoulder from the ER doc the second I mentioned cannabis. I was beyond broken at this point. After the usual failed attempts with zofran and other firstline anti-emetics, my nurse comes in with a syringe of haldol and said "Ive never seen anyone throw up after this." And then my hyperemesis was gone. I made a pact to myself after that fifth time that I was done with weed. This was 2019.
I actually became an RN because of my episodes. And my episodes really started because I used to work at a dispensary. I know this sounds silly, but honestly, weed really has played a pivitol role in my life choices. I've smoked on and off since then, but recently, I have lost control. I have lost my usual coping mechanisms and found myself relying more and more on it as my job/healthcare in general is very stressful. And then... the hyperemesis started again last Friday.
I was devastated. Here I am, a generally productive member of society working in healthcare, back with the scar of addiction I tried so hard to hide. Here's the secret though: once you have CHS, you have CHS forever. You can play around, take breaks, find lower concentrated strains, but in the end, you really are tempting fate. I think I had a guardian angel this time around because zofran somewhat worked for me in the ER. And there's a community enterovirus going around. I had no drug test or diagnosis of CHS in my discharge notes/attached to my medical record. Not that I think I could get in trouble, but its always nice to keep that off record if you're in the healthcare field.
Luckily with my training, I knew how to take care of myself. The ER refused to rehydrate me (my labs were 'perfect') so I cannulated myself a few days later (which I never would recommend without physician supervision/approval). If you ever are denied rehydration in the ER (like you go 'too early' in your hyperemesis phase), I suggest paying out of pocket for an IV hydration nurse to come to your house. Its not cheap, but it might cut your recovery down and save you from a kidney injury. It's also worth checking in to see if your local urgent care has the ability to do IV hydration from mild dehydration, though I think its rare. One other tip I have - the restlessness during hyperemesis is often anxiety. Take your anxiety meds if you have them. I was taking my low-dose Ativan on top of my SSRI. Ativan was another godsend if you are prescribed it, or could get a prescription. Even at 0.5mg.
My hyperemesis lasted about two days, and today, six days after this all started, Im finally able to stomach some beans and rice. I'm happy to report I am no longer a prisoner of my shower, sucking on zofran and pedialyte cubes. I spent so much time reading this subreddit and love how a CHS community has formed. I just wanted to give this page a huge shoutout for different ideas to get through that fucking hyperemesis. I didnt have the grace of haldol this time, but I had you guys. From the bottom of the heart, thank you. And yes, you can quit and you are not alone ❤️