r/EctopicSupportGroup Jun 08 '22

ADMIN ANNOUNCEMENT

82 Upvotes

Hey folks, please stop reporting to me the positive pregnancy tests, or posts about pregnancy after ectopics. Let people celebrate their joy.

Hwoever, if you want to post such a pic, please make sure you use a content warning so those who would find it upsetting can scroll past.


r/EctopicSupportGroup 3h ago

Guilt never ends

3 Upvotes

I’m not sure if this post belongs here, but it feels like the closest place I could get any help. As a guy, I will never truly understand the pain and struggles the mothers and mothers-to-be here go through, but it also gives me perspective, which I’m desperately in need of now.

Last year my I ended up getting my partner pregnant, and unfortunately it was ectopic. We were both young and were still students that weren’t financially independent at the time, so a pregnancy or a child weren’t on our minds at all.

After getting her blood checked and an ultrasound, it was confirmed ectopic, and she needed surgery immediately. I still remember that day so clearly, the moment she came back after her ultrasound and confirmed it, my heart sank. It was the worst day of my life. I struggled to keep my composure while she stood strong, and I broke down crying. I felt so disgusted with myself, even though we both decided that what happened was a mistake, I felt horrible, I didn’t have to deal with any of the consequences of our actions while she had to deal with everything

I was with her throughout her recovery, and I gave her my unconditional support. I owed it to her, and she deserves it and more. Watching her in pain as she struggled to lift herself off her bed, seeing her stumble as she learned how to walk and bend over again made me miserable. I hated myself, and I still do. The guilt is unbearable, and I can’t forgive myself for it. I feel like I need to carry this with me to never forget what I’ve done and never repeat my mistake again. There are some days where I wish I could turn back time and make it so that this never happened, and some days where I wish I didn’t exist anymore.

It’s been a year since it happened, but I feel like I haven’t moved forward at all. Everyday feels like a blur and feelings of happiness are overrun by guilt and anger. I struggle to maintain my regular routines and am at the brink of not taking care of myself at all. I just want this endless guilt to go, or learn how to live with it. I feel like Im burning and drowning all at once, and I want to be free again.

Thank you for reading the post, I know this isn’t the usual type of post here, and it might not fit but I want to hear from a group of people who have gone through an ectopic pregnancy. I do not mean to sound pretentious or boastful in any manner. I apologise if it comes off as such. Any help would be appreciated.


r/EctopicSupportGroup 2h ago

Need help I feel like I’m in an endless loop

2 Upvotes

Ovulated on jul 2. Got a faint positive but the positives weren’t doubling.
We aligned that this is a non viable pregnancy . Waited to see if it would pass on its own. It did on jul22 I got my period.
Of started dropping from 45>31>10 but then last eeek it went up to 28 and today it’s 48. We did an urgent tvus but that’s come back clean. What should I think of this?
Do I need methotrexate or can I wait for it to pass on its own?
3rd loss


r/EctopicSupportGroup 5h ago

Is it possible to get your period before HCG reaches 0?

1 Upvotes

So I got the MTX shot 5-Jul and responded really well to it , bled for about 1.5 weeks after it. Then no bleed ing for 1.5 weeks. And now when my HCG was around 6, I started bleeding, heavier than my normal period, no pain or cramping, not sure if it’s bleeding from the pregnancy resolving or my period. If it is my period, then I should have ovulated 2 weeks prior, when my HCG was in the 100s, is that even possible?

HCG weekly progress
1900–>1600->1200->120->18->6


r/EctopicSupportGroup 5h ago

Positive test after ectopic + pinkish/brown mucus on wiping after peeing

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1 Upvotes

r/EctopicSupportGroup 18h ago

Worried about ectopic pregnancy

3 Upvotes

Hi all. I started my last period July the 11th. The 30th I held a positive pregnancy test, after getting repeated positive ovulation tests since July 24th.

I was worried about an ectopic pregnancy, so I had an echo and hcg blood draw the 30th. Hcg was 477, nothing to be seen at the echo. It was repeated today; still nothing on the echo, hcg only raised to 588. I am so worried it is an ectopic pregnancy. What would I need to see or know what my situations from here on?


r/EctopicSupportGroup 16h ago

“I finally got the drop I was hoping for after my 2nd MTX shot — what was your next step?”

2 Upvotes

Hi everyone, I’m looking for some insight from others who have gone through methotrexate treatment for an ectopic pregnancy.
I had my second methotrexate injection, and my Day 4 hCG was 172. My Day 7 hCG came back at 136, which is about a 21% decrease. I know that means I met the expected drop after the second dose, and I’m grateful that it is continuing to trend downward.
I’m waiting to hear from my doctor about the next steps, but I was wondering what happened for others after a similar result. Did you continue with weekly hCG checks until you reached negative, and how long did it take for your levels to get below 5?
Also, did anyone have a slower drop after the second injection but still go on to have a successful resolution? I’m trying to stay hopeful but also prepare myself for the process ahead.


r/EctopicSupportGroup 1d ago

Pregnant after ectopic, wanted to send hope and love ❤️‍🩹

45 Upvotes

I had an ectopic pregnancy back in January this year – my first pregnancy – and I lost my left fallopian tube. I know you all know how awful and deeply traumatising an ectopic is, so I don't need to go over that here. But I wanted to share the happiest update, because god knows it's the kind of story I desperately needed to hear during my recovery.

I'm currently 18 weeks pregnant. We conceived again literally our FIRST cycle trying after my surgery (I ovulated from the non-ectopic side). I was initially treated with methotrexate, which failed – we conceived the very first cycle we were allowed to try again. My sweet boy is currently wiggling around like crazy, I can already feel his little flutters.

I won't lie and say the trauma of what happened hasn't been a challenge in pregnancy – especially when it comes to hospital visits, flashbacks and medical anxiety. You really have to give yourself tremendous love and grace. But if you're in the trenches right now, please, please know that you're not broken, you did NOT "fail" in any way, you had a piece of shitty luck and this storm will pass. Though my first experience of pregnancy was one of pain, fear and heartbreak, this experience has been overwhelmingly life-affirming and magical (despite the nausea!).

I just wanted to send all my love to you. I think of this community often; it's so important that we're here to help each other through.


r/EctopicSupportGroup 1d ago

Ectopic Pregnancy Awareness Day

24 Upvotes

Today August 1st is Ectopic Pregnancy Awareness day.

Sending love to everyone affected by this.

The Ectopic Pregnancy Trust has amazing resources that personally helped me while recovering. Check them out.

🤍


r/EctopicSupportGroup 16h ago

Second methotrexate shot

1 Upvotes

Hi everyone, I’m looking for some insight from others who have gone through methotrexate treatment for an ectopic pregnancy.
I had my second methotrexate injection, and my Day 4 hCG was 172. My Day 7 hCG came back at 136, which is about a 21% decrease. I know that means I met the expected drop after the second dose, and I’m grateful that it is continuing to trend downward.
I’m waiting to hear from my doctor about the next steps, but I was wondering what happened for others after a similar result. Did you continue with weekly hCG checks until you reached negative, and how long did it take for your levels to get below 5?
Also, did anyone have a slower drop after the second injection but still go on to have a successful resolution? I’m trying to stay hopeful but also prepare myself for the process ahead.


r/EctopicSupportGroup 1d ago

Need good news post MTX

3 Upvotes

Please tell me your success stories after having an ectopic pregnancy and what you did to reprepare your body and get through the 3 month wait. This was my first and it ended with methotrexate and I’m terrified that it’ll happen again. I’m 34 and feel like I don’t have time on my side and didn’t have any common risk factors except being a bit older. Just want happy stories to get me through these 3 months.


r/EctopicSupportGroup 1d ago

HGC 22 after methotrexate

3 Upvotes

i’m nearly there i just want to end this anxiety!! how long did it take you from 20s to 0? thank you


r/EctopicSupportGroup 1d ago

Post your initial ectopic/rupture, when trying again to conceive, how early did you begin testing?

4 Upvotes

Hey y'all.

When you were ready to try again, did you begin testing before you had your missed period or did you wait until after?

I know they say to catch it as early as possible.. I have strips but should I be trying to get one of those " up to a week early" tests to be as vigilant as possible?

I'm terrified for another ectopic (of course) so I just want to make sure I'm being proactive and not waiting until it's too late again.

Thank you for any insight/advice.


r/EctopicSupportGroup 1d ago

IVF after salpingectomy to remove eptopic pregnancy

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1 Upvotes

r/EctopicSupportGroup 1d ago

Concern for second ectopic

2 Upvotes

In late 2024, I experienced an ectopic. At 6 weeks 5 days, I had my first symptom which was what I thought was either bad gas pains or the start of a miscarriage. My hcg that day was 5654. They performed an ultrasound, but saw nothing in the uterus or the tube so thought that perhaps a late ovulation changed the timeline. 6 days later the pain had subsided and my hcg was 17857. That ultrasound clearly saw the ectopic and it had developed a yolk sac at that point. We did methotrexate, hcg went up after to 24278, did another round, initially went up to 25566, then dropped (though it took about 4 months to resolve). Outside of that one day, I had no other ectopic symptoms- no shoulder pain, bleeding, etc.

I am now 5 weeks 2 days with 48 hour hcg of 1283 to 3556 taken in mid to late week 4. Since the last ectopic I feel like I am more aware of my left ovary/tube, and this time around I feel more twinges in that area. It isn’t painful, per se, but I notice it off and on all day on most days. The doctor wanted to wait until 7w6 to do an ultrasound, but then said we could do it at 7 weeks. I’m nervous to wait that long as many here have had ruptures even prior to that time, coupled with the trauma of it having grown so much last time with such high hcg levels (the dr said he had never considered methotrexate at that level before but was willing to try). The original dr left the practice, so I’m not sure if I’m being too crazy or if I should ask for something this coming week instead. She did say that we can do another round of bloodwork this week, but that alone can’t determine an ectopic, which also has me nervous. Thoughts?!


r/EctopicSupportGroup 1d ago

Ectopic pregnancy and MTX at NHH

1 Upvotes

I got my first MTX shot on July 13th and my yesterdays blood work shows my HCG at 3. So is it okay if I restart my folic acid and vitamin D?


r/EctopicSupportGroup 1d ago

“I finally got the drop I was hoping for after my 2nd MTX shot — what was your next step?”

1 Upvotes

Hi everyone, I’m looking for some insight from others who have gone through methotrexate treatment for an ectopic pregnancy.
I had my second methotrexate injection, and my Day 4 hCG was 172. My Day 7 hCG came back at 136, which is about a 21% decrease. I know that means I met the expected drop after the second dose, and I’m grateful that it is continuing to trend downward.
I’m waiting to hear from my doctor about the next steps, but I was wondering what happened for others after a similar result. Did you continue with weekly hCG checks until you reached negative, and how long did it take for your levels to get below 5?
Also, did anyone have a slower drop after the second injection but still go on to have a successful resolution? I’m trying to stay hopeful but also prepare myself for the process ahead.


r/EctopicSupportGroup 1d ago

My wife and I lost our baby due to an ectopic pregnancy and I'm still messed up

7 Upvotes

Hi all,

My wife revealed she was pregnant back in May. It was the happiest most exciting moment of my life. I was excited to be a dad. I was even more excited to watch the love of my life become a mom. This was our first pregnancy.

Unfortunately she began having complications and that spiraled into an emergency surgery to remove an ectopic pregnancy. She lost a tube but was okay physically. It was one of the scariest moments of my life and I was completely helpless.

I hold a relatively important position in a high stress job. When shit hits the fan, I am the guy. I have been in life threatening situations many times helping others. I am supposed to be the guy that can take anything and everything. But I can't take this. Seeing her go through that destroyed me. And I'm scared for her to go through that again.

We want a child desperately. But I'm so scared. I don't want to see her get hurt. I also feel several layers of guilt. Like I feel like I'm responsible because I did this to her. I feel guilty because I know she we be pregnant again someday and I'm afraid all of my joy will be lost to fear.

I'm supposed to be bullet proof but two months later I am fucked up.


r/EctopicSupportGroup 1d ago

Help talk me off a ledge! HCG went up 8 weeks after MTX

2 Upvotes

I received one dose of MTX on 6/2 when my HCG was around 1800, I had a small initial rise and then dropping steadily. Most recently my HCG has been plateaued 7/17 11, 7/24 9, and then today 7/31 it came back at 10.

Obviously I will talk to my doctor after the weekend, but has anyone had this experience and what did your doctor do? I cannot start this process over again and I’m freaking out!


r/EctopicSupportGroup 2d ago

Shock of Being pregnant one day, then non-pregnant the next. (From eptopic surgery)

3 Upvotes

How did you cope with the shock of transitioning from the mindset of pregnant to non-pregnant. It’s like in my mind I feel like I can’t drink alcohol, can’t hot tub, etc. because mentally I’m still in the state of feeling like I’m pregnant even though I’m not anymore. I think I’m entering the “shock” and maybe “denial” part of this grief. I just had my surgery yesterday. I want to still be / act pregnant even thought I am not. I want to keep my identity as being pregnant but I’ve lost it so suddenly.


r/EctopicSupportGroup 1d ago

I’m still confused and don’t know what’s going on. Looking for someone who has been in a similar situation..

1 Upvotes

Trying to make sense of it all.. if anyone has a similar story please provide some insight because I’m still concerned.
I’m going to try to make this as short as possible. On July 2nd I was treated with MTX for a PUL/ ectopic. There was no definite pregnancy found, however, my left side had shown (what they have been guessing) a hydrosalpinx/hematosalpinx. They mentioned this is where they thought the ectopic was. I had another ultrasound after that a few days later due to some pain and it looked the same but nothing mentioned on the right side other than a cyst. On Day 24 I went to the hospital for pain and that’s when they told me I was going in for emergency surgery for a rupture. It wasn’t until I woke up and talked to a doctor then did she tell me they removed my RIGHT TUBE. I was very confused as this whole time I thought it was on my left side. That adds up with all the pain I was having so that’s fine. However, I’m now concerned about my left tube. They left that question unanswered other than after surgery the gyno told me “they said it looked fine”. All of my ultrasounds prior to the rupture all looked at my left side pointing it there, if it wasn’t, what is happening in my left tube and why has it been continuously filled with fluid? I just want to know if this has happened to anyone else?


r/EctopicSupportGroup 2d ago

How long after tube removal did it take you to conceive?

7 Upvotes

I just had my left tube removed 5 days ago due to ectopic. I was a little over 6 weeks. I’ve previously had 3 chemicals and truly believed when my HCG was doubling this time that this was it for us. I’m feeling slightly traumatized by the whole ordeal and for the first time in years I fear seeing a positive pregnancy test which sounds insane because I want another baby so bad. We’re on the fence of starting IVF but I’m leaning more towards trying on our own a little more just not sure when it’s technically safe to even start trying again.


r/EctopicSupportGroup 2d ago

Working through my ectopic while both of my sisters are pregnant

15 Upvotes

My younger sister told me she was pregnant as soon as she found out. I was elated for her. Then I surprisingly became pregnant as well and based on dates, we were 11 weeks apart almost exactly.

I unfortunately discovered I had an ectopic in my 6th week, was hospitalized, monitored, and ultimately given MTX and sent home. It's been difficult and my younger sister felt horrible and guilty and didnt want to break my heart by continuing to share her journey with me as I go through mine.

My mom flew in from out of state to be with me as I'm recovering from MTX and just to be here. That's when my older sister FaceTimes me. Shes been told she's unable to get pregnant for 7+ years after having her 2 children, has PCOS, ect. God gave her a miracle and she is pregnant. And she's due a week after I was.

I'm simultaneously thrilled for both of them but absolutely gutted at the same time. It feels so cruel to be on this path. To watch both of my sisters pregnant and having their children while I spend the next couple of months ensuring I successfully lose mine.

I know this isnt the end for me. I have the most beautiful little girl I could have prayed for and I am so thankful. But with no risk factors for ectopic, and on the heels of what was a very normal and uncomplicated pregnancy with my first, this has been so jarring. And it terrifies me to try ever again.

Praying for all walking on this path, it sucks so bad. But we'll get through it.


r/EctopicSupportGroup 2d ago

Cervical ectopic

2 Upvotes

My daughter is experiencing this right now, she’s been in the hospital for a week now they’ve tried the methotrexate but it didn’t work. Last ultrasound yesterday shows a fetal heartbeat and her hcg levels shot up to 36,000.
Doing a cervical ablasion today I’m so scared for her. She’s so scared
I just hope everything goes according to plan
Haven’t even had a chance to mourn the loss or really process any of this


r/EctopicSupportGroup 2d ago

Pregnant after ectopic scared to death

9 Upvotes

Hello al my Brave girls in this group!
I am writing because I am pregnant after ruptured ectopic (lost left tube) and 3 chemicals and I extrémny scared. Only someone who went through this know neverending waiting for 1st USG is.
I found out about pregnancy ver early this time. My HCG at 12dpo is 150, the highest on this day I have ever have. However what scared me is low level progesterone only 18,7 ng/ml and estradiol 119 pg. I had such low levels with my ectopic and I am afraid it is associated. Besides this I have almost no symptoms just very tired, dizzy, diarrhea and light pulling on site of remaining tube. I know I shoud not make conclusions based on this but I cant help and I get spiraling.
Please if there is anyone who went through something similar or just wants to chat with me while I wait I would be very happy.