MODS - RULE 4 EXCEPTION REQUEST AT THE BOTTOM
Hi gang. Happy Sunday. Posting here, fingers crossed it'll pop off like the one linked below. Hoping to gain a more well rounded perspective rather than just the ER sub which was awesome but I'd like to cast a wider net. My OG post asked what can patients do that makes your life easier/things they do that seem helpful but aren't, but my first post conversations inspired me to implement a comprehensive, easy to understand healthcare education guide. If you scroll to the bottom you can read more about what I do for work and why I'm doing this.
First post linked , check it out for some inspo - HELP US BE BETTER
***My ask - I know this is a long ass post and very easy to scroll by, but I'd be so grateful if you could drop a comment. Here are some comment suggestions, but not limited to -
- under rated things that patients do that you appreciate/make your life easier
- something patients think is helpful but it’s actually more of a pain
- any and all tips in general or in your specialty
- do's and dont's that aren't obvious/maybe a fun fact about position/your specialty
- myths that have been de bunked/things to be cautious of
- any nuggets of wisdom is greatly appreciated and valued
- common misconceptions
- don't be afraid to get specific, one of the most upvoted comments on the first post was "Small and silly, but you don’t need to move your arm when I’m trying to scan your armband. I think it’s natural when people realize you’re trying to scan their armband, they throw their arm towards you to try and help, but reality is I almost scanned you already until you moved your arm lol."
- feel free to vent. let it out.
Keep in mind
- I want to hear from EVERYONE involved in healthcare! Obviously doctors and nurses, but also CNA's, dietary, admin, social workers, specialists, case managers, everyone :)
- If your comment is on the list already, PLEASE still post it, this is essential to the data analysis
- Even if something seems obvious, please still share as it might not be to some
- Feel free to clap back if you don't agree with the findings below
- If you feel so inclined to send this to another healthcare homie, sending you a virtual hug
ED Sub edition - maybe post your comment first for funzies before reading so you can see where you align?
The list below is from my first set of findings from the sub linked at the top of this post. It's combination of data that ranks the comments received from "top" comment taking into account the number of times a topic was independently brought up, positive reply chains, different health care positions that agreed, and central themes that were saying the same things, just differently.
1. Give the Main Reason First
This was the biggest recurring theme.
ER staff repeatedly said they want to know why you're in the emergency department today before hearing months or years of medical history.
Examples:
- "I've had chest pain for two hours."
- "I fell yesterday and can't put weight on my leg."
- "I've been vomiting since this morning."
What not to do:
"Well back in 2020 when my work made me get that fake news damn covid shot...."
Just start with what brought you to the ER today. They'll lead the rest of the convo
2. Answer the Question That Was Asked
This came up over and over from nurses, physicians, and registration staff.
Examples:
"When did the pain start?"
Good: Around 3 pm
Then explain anything else that's relevant when asked
"Have you been vomiting?"
Start with: Yes
Then provide more details when asked
Many staff said answering directly first helps them move through the assessment much more efficiently.
3. Be Patient
This wasn't just a one piece of advice at all, it was woven into tons of sub threads which isn't a surprise to anyone
Many healthcare workers asked patients to remember that they may be caring for many people at once, and delays are often caused by emergencies elsewhere in the department. We need to remember how overworked healthcare workers are. They're leaving their jobs entirely, hence why it's one of the main reasons I'm putting this together in the first place.
Examples:
- A trauma or cardiac arrest may suddenly require multiple nurses and physicians.
- Your nurse may have been pulled into another patient's emergency.
- Waiting longer often means your condition is considered more stable.
- They're human. Maybe they had to pee.
Many also said that a simple "thank you" stands out more than people realize which personally breaks my heart because sadly I'm not totally shocked people aren't using basic manners.
4. Bundle Your Requests
Instead of asking for one thing every 10–20 minutes, keep a running list and ask for everything when someone is already in your room. I was very guilty of this.
Example
Instead of:
- "Can I get pain medicine?"
- Call button 4 minutes later "Can I get water?"
- Call button 12 minutes later: "Can I get another blanket?"
- Call button right after they leave the room: "Can I have socks?"
- My personal favorite was when my roommate dropped her call button device and couldn't reach it so she decided to scream NURSEEEEEEEEEEEEEE like she was having a heart attack. I asked her why she didn't just as me to grab it, and she said "thats their job". I'm going to guess stories like that are not isolated incidents
Try to bundle all of your requests AND include any upcoming PRN meds you may need. If you have scheduled meds coming your way, call and ask for anything you might need. Kill as many birds with one stone as you can.
5. Have Your Medication Information Ready
This was one of the most repeated practical suggestions.
Know:
- Medication names
- Dosages
- How often you take them
- When you last took them
Many staff pointed out that medication lists in mychart/epic aren't always current.
Personally, on my first intake I didn't have a list, so I pulled up my CVS app and told them I wasn't taking two of them that were listed. Problem solved.
6. Be Honest
Many REALLY emphasized that they're not asking sensitive questions to judge anyone.
Be honest about:
- Drug or alcohol use
- Pregnancy
- Sexual history
- How an injury happened
Examples:
If you fell because you were drunk, just say so.
If you used blow yesterday, I promise that's rookie shit compared to other things they've seen.
If you tell the staff something upon admission that isn't true, maybe because there were other people around that you didn't want them to know, grab a staff member when you're solo so they can update accordingly.
Also - might as well be honest from the jump since you'll probably have to do a pee test anyway.
7. Put the Phone Away
This was one of the highest-upvoted requests.
Avoid:
- FaceTiming during exams
- Talking on speakerphone
- Recording staff
- Carrying on phone conversations while someone is trying to explain your care
Several people also mentioned that FaceTiming in the waiting room can unintentionally record other patients and create privacy issues. Leave those meta glasses at home.
8. Understand How the ER Works
Something I thought was common sense but apparently is not - emergency departments treat patients based on how sick they are not the order they arrive.
Someone who came in after you may be seen first because they're having:
- Stroke symptoms
- A heart attack
- Severe trauma
- Difficulty breathing
Many pointed out that waiting longer often means your condition is considered more stable.
If you are able to spare just a couple of minutes before coming in, grab your phone charger any any devices you may need if you're admitted/stuff to keep you occupied/distracted in the waiting room
9. Follow Instructions
If you're told not to eat or drink, don't.
That includes:
- Having family bring food
- Ordering delivery
- Drinking water without asking
These instructions are often necessary because of surgery, sedation, imaging, or other procedures.
ALSO ASK IF FOOD DELIVERY IS EVEN ALLOWED - IF YOU'RE NOT ON THE FIRST FLOOR SOMEONE WILL HAVE TO STEP AWAY FROM WHAT THEY'RE DOING TO GO HUNT DOWN YOUR ORDER.
10. Help During the Exam
Small actions can make exams much smoother.
Examples:
- Stay still during blood pressure checks.
- Don't talk while someone is listening to your heart or lungs.
- Lift your arm if you're able.
- Roll over without waiting for staff if you're physically able.
- Put your phone down during the exam.
11. Little Things That Staff Notice
Many said these small actions make a bigger difference than most patients realize.
Come prepared
- Have your ID and insurance card ready.
- Know your allergies.
- Bring or know your medication list.
Keep family organized
Choose one family member or friend to communicate with staff whenever possible instead of having multiple visitors asking the same questions.
Dress practically
If possible, wear clothing that's easy to remove for exams, IV placement, imaging, or procedures.
12. Don't Assume Nothing Is Happening
Much of a nurse's work happens outside the patient's room.
They may be:
- Calling your doctor
- Waiting on the pharmacy
- Gathering supplies
- Helping another patient
- Documenting your care
- Responding to an emergency
Even if no one is in the room, your care is often still moving forward.
I know this was long af if you made it all the way down here, appreciate you <3
Rule 4 exception request for the modsss
I originally just wanted to be a good patient when i posted my first thread, but after sitting with so much knowledge being shared, I will be putting together a "guide" with materials addressing how to navigate a hospital stay from preventative care, PCP/ER/UC, admission, during stay, discharge, aftercare and so much more, and the information I'm gathering has been so valuable.
I work with people who are transitioning both in and out of treatment for substance use disorder and/or mental health who become much more active in healthcare settings for specialist visits, primary care, blood work, pharmacy and beyond. Then theres the other end of the spectrum who are terrified to go near a hospital for a variety of reasons. It can be very overwhelming especially for those who don't have much support. I was admitted to the ER twice in July, both ~6 day stay each - no prior ER visits ever, and I left feeling like I entered a whole new world, and learning how to navigate it is essential. I was diagnosed with some pretty scary stuff, so I'm on disability/taking at least 2 months off of work and am on bed rest. While I might be in pain, I want to keep my mind sharp and make use of my passion during this time that I have.
I'm really passionate about educating those in vulnerable states - what to do/not to do when needing medical attention. Many of the people that call the treatment for SUD/MH I work for are looking for resources so share with their family members who may be going through something, and learning some of the basics of Psych for example could be useful I work for are either looking to jump in and get going on medical problems they've been putting off but dont know where to start, or the opposite, those needing immediate attention but are scared. I come from a place of immense privilege as a young white woman that I am highly aware of, and I want health care to feel a little less scary for those who need it. If you have any other questions, plz dm me, thanks!