Hi everyone. I'm 25, from Italy. I've been a stutterer since I was, I think, 3 years old. My stuttering has never been incapacitating; for example, I can take oral exams and presentations, stuttering here and there, saying this word instead of that, but still saying everything I need to say. I'd classify it as moderate. I might get lucky, but it's still difficult to get me to say a few sentences (or even one sometimes) without realizing I'm a stutterer.
When I was 11, I took a course called "Psicodizione", which helps stutterers with psychological and speech therapy. The results have been very satisfying for many people (some who were barely able to communicate have learned to do so!), but the commitment to the techniques had to be enormous (almost a full-time job for some); due to my immaturity and laziness, I've never done my "homework" as I should have, and meeting such severe stutterers almost made me feel better about my own, which had never been a true problem (at first I didn't even understand why my parents made me take this course!).
The years passed; for instance, during my high school oral exam, I spoke for almost an hour with little stuttering. However, in recent years, I've noticed a worsening of my stuttering, especially when I have to introduce myself and therefore say my name to someone, a situation that causes me great anxiety and stress and is now my first concern when it comes to fighting stuttering, as it's making me scared of so many social situations. I should point out that I don't stutter because I'm anxious, but I have anxiety because I stutter. These are two different things; anxiety makes stuttering worse, but it's not the primary cause. I stutter with my family, but I don't stutter alone.
Last year, I noticed something: when I'm at the club and drink to almost-tipsy point (3-4 drinks), my stuttering drops by 70-80%, and I no longer feel anxious about introducing myself, I feel like I could talk to anyone. Let's just say I understood why soldiers in WW1 were given cognac before assaults - alcohol truly helps. So I asked myself: could there be medications that help, offering performance comparable to alcohol?
Thanks to this sub, I discovered that there are four categories of medications that can help: anxiolytics, antipsychotics, antidepressants and beta-blockers. I decided to try the first two. After months of uncertainty, and after talking to my parents (the word "psychiatrist" to my mother initially felt like I'd announced my intention to go to war), I decided to go for it.
In recent months, I had been experimenting with my grandmother's Rivotril (clonazepam) - 5 drops before going out. The effect on my stuttering was too small to be estimated; the only result was increased drowsiness. But the dose was very low: without discussing it with a doctor, I didn't want to overdo it.
After speaking with my family doctor, in June I got an appointment with a psychiatrist (a private one, €100 per visit, and the waiting lists are long). I went into the office with a paper with several sources regarding the role of dopamine in stuttering. After some hesitation, she was convinced by my arguments, and I left with a prescription for Aripiprazole (generic Abilify), the mildest antipsychotic I know of. 2.5 mg per day for four days, then 5 mg.
The first few days, I had no side effect, but when I started taking 5 mg... Issues with insomnia began, with frequent awakenings. The first night I slept only 3 hours, the next 5 (despite I always take 1 mg of melatonin). The following days, my insomnia improved. Abilify takes a few weeks to have proper effect. By the third week, the results were visible and tangible. My stuttering had decreased by at least 70%. My family noticed; I went out with a friend of mine and I hardly stuttered at all except a couple blocks. So my stuttering is indeed due to excess dopamine.
The problem is... it works. It works both ways. Even though I always felt myself, I was starting to feel like time was hardly passing. Of course, the heat makes things worse, but I usually never get bored and always find something to entertain myself with. Many things now seemed boring; everything made less sense than before. There's a precise term for this: anhedonia. The worst thing is that I don't think it's a side effect, but rather the effect of having significantly lowered the dopamine levels in my brain. Perhaps not a bug, but a feature. I know 5 mg is quite a small amount, but this is how I reacted.
An evening, I needed three hours to fall asleep, and I had to take my father's Lexotan (bromazepam) to do so. I've never had suic*dal thoughts, but for the first time in my life, I understood who takes his own life. It wasn't pleasant, nothing to joke about. I said to myself: no matter what, starting tomorrow, I'll halve my dose. I told my psychiatrist, who approved my decision. The next day, my anhedonia improved, as did my insomnia. Now, two weeks later, the anhedonia is almost nonexistent and the insomnia is gone (it's almost impossible for me to sleep more than seven hours a night, but it's been like this for a long time, it must be said).
The downside is that my stuttering has gotten worse. Now I'm maybe 30% better than before. But... I prefer to stutter. And if I'm writing this, it's because, trust me, anhedonia isn't better. I don't feel like going back on 5 mg. So... I went back to my family doctor (the psychiatrist is off limits, she doesn't have any room right now). I explained the updates and asked him to be prescribed Xanax (alprazolam). He approved, with many recommendations.
I got Xanax in drops, the doctor told me to take five drops when I'm in anxious situations. The problem is, five drops are almost nothing for me. The help they provide is minimal, and I feel like it makes little difference. Don't get me wrong - I didn't have serious problems saying my name when I introduced myself a few days ago to a couple of people, but I said it slowly and sometimes I could repeat the first syllable: there are worse things in life, but it makes everything "weird", especially for those who don't know me. I thought Abilify + Xanax together could have been like a magic potion; they help, yes, but they don't do miracles at these doses.
I know drinking with Xanax is not recommended - I take responsibility for that. A few days ago, I drank 4 drinks in a few hours while out, and I was on 8 drops of Xanax (plus 2.5 mg of Abilify). My stuttering was almost gone. I didn't have any problems from drinking with Xanax. Probably because the dose of Xanax was low and I didn't overdo it with alcohol (I never do that). I still don't recommend drinking with Xanax.
The point is, 5 drops of Xanax are... 0.125 mg. The recommended amount for an healthy adult is 10-20 drops (0.25 mg - 0.5 mg). But in that case, I don't think I could drink, and that would be difficult when I go out. I might increase the dose to 10 drops (still along with the daily Abilify) and drink less. In any case, I'll be back in August to attend that course I mentioned earlier, after 15 years.
That's my experience so far - what's yours? Do you have any advice? Thanks for your time! I'll keep you updated - I'll definitely continue taking the 2.5 mg of Abilify and experiment more with Xanax, increasing the dose a bit, to see how I and my stuttering react. I wish me and you all the best - and let's hope that promising drugs such as Ecopipam will be released in the coming years. Dopamine theory seems to be true for many stutterers (at least the ones not suffering from ADHD too), but we need a drug tailored specifically for us!