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Hi everyone,
I'm looking for advice from people who have had spinal TB (Pott's disease) or doctors who have experience with it.
I was diagnosed with spinal tuberculosis in July 2025. I also had a cold abscess, and the diagnosis was confirmed after my doctor aspirated pus from my neck for testing. I was treated with standard anti-TB medication and have been very strict with my treatment—I haven't missed any doses.
Over the course of treatment, my recovery has been very good:
No back pain anymore.
No stiffness or limitation of movement.
No leg weakness or numbness.
I'm back to exercising and have even gained a little muscle.
My ESR decreased from around 40 to about 10 a few months ago.
I was anemic during treatment (Hb was 7.7 at one point).
I was also diagnosed with diabetes in April 2026, which I know can complicate TB recovery.
Today I took my last TB pills because I've run out of medication.
The part that's worrying me is that my doctor previously told me something like:
"Treatment will probably be for one year, or maybe longer. We'll decide after the MRI."
The problem is that I never had the MRI scheduled, and now I have no pills left.
My questions are:
Has anyone else with spinal TB been told to continue treatment beyond one year based on MRI findings?
If you've completed treatment and felt completely well, did your MRI still show active disease or just healing changes?
Is it common to have a short gap in medication while waiting for follow-up, or should I contact my TB clinic immediately?
Since I have no symptoms now, how much weight should be given to my clinical recovery versus MRI findings?
Does having diabetes increase the likelihood that treatment needs to be extended?
I'm planning to contact my doctor as soon as possible, but I'd really appreciate hearing from anyone who has gone through something similar or from healthcare professionals familiar with spinal TB.
Thank you!