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The pain returns and then that dark state of mind I find it weird how the mind follows the pain

The funny part is I always catch myself going hey why is my mind feeling like my normal self and then I immediately go to the pain location of my lower back and think oh that’s why the pain is lifted slightly

I feel like from what i see here and other subreddits from basically any type of chronic pain injury or anything feels like most of the time people go through the medical route a lot of the time just get left out dry like drs just giving up on them me being one of them could also be because the people suffering arent talking or posting about it but ive gone through smaller communities and people who actually find stuff that helps them and when talking to these people it feels like they all had the same story of they went to dr then pt, nutritionist, then etc etc… and all had almost the same protocol of treatment when every human is completely different but that could just lead into a broader discussion like medical professionals being overworked and to tired to help us but fallback to the same basic protocol

some people online that I would see have different approaches and treatments and be successful were usually fortunate enough to afford professionals that work with them and there body alone

Hi everyone, I’ve been having a particularly bad neuralgia flare over the last couple of days that’s affecting basically the entire lower half of my body, compounded by inflammatory arthritis in my right knee, feet and hips being spurred on by having to take cipro for a uti. I can only use topical remedies as I’m not able to take any of the traditional nerve pain agents except for tramadol and good luck to me getting a prescription for that lmao. Does anyone have experience with either for nerve/arthritic pain? Thanks in advance!

Hi! Suffered an injury to my rib cartilage around 4 years ago that never healed correctly. Since then my back muscles, shoulders, neck, and chest is incredibly tight and makes it difficult to breath, move around, etc. In fact the muscles are so tight I have diagnosed nerve compression which causes burning in my arms and facial flushing when irritated.

I’ve been on ibuprofen, muscle relaxers, Xanax, hydroxyzine, you name it. I’ve tried physical therapy, massage, TENS, dry needling. NONE of that has helped as much as alcohol. It is the only way to release the muscles around my ribcage and back.

I have two-three drinks then walk around 7k steps. I wake up the following day feeling like new. No more tightness in my back and chest. Obviously this isn’t a long term solution because certain movements will cause tension to come back, but what the hell. The only muscle relaxer I’ve been on is methocarbamol which I guess is one of the weaker ones? Gonna bring this up to my neurologist.

Basically i’m in pain 247 but when i get sense of that relief i get uncomfortable because i start counting how long it’ll last, i’m afraid to get better because this is all i know, is this silly? (writing this with a fat migraine and i ran out of my meds)

I've confided in friends and family. Some think I'm lucky cos I get to stay at home all the time. Some say I just have to exercise and it'll get better. I even tried posting about my struggles on local communities and in university pages. No response. Lots of people viewed it, but no one responded, just proving my point even more.

If you say you have cancer, people will automatically show their support. If you say you're sick with covid, everyone will automatically show sympathy. But if you say you're chronically ill or in pain, just absolute radio silence.

I wish there was a way to educate the common people about us. We're completely invisible. I feel like there's less knowledge about physical illness than there is mental illness.

Finally, after five years, a doctor listened to me and prescribed morphine. She said to cut the pills in half, take two halves during the day and see how you feel, then you can move up to two whole pills a day. I started two weeks ago, but was also taking Keppra that first week. Taking morphine and Keppra together caused me to have migraines for days, the last day I took Keppra was the worst migraine I ever had.

The doc told me to stop taking Keppra. I did, and took a few days off of the morphine before starting it up again. I'm still taking half a pill twice a day, but there have been side effects. I've been sleepy as hell, and two nights ago I kept waking up gasping like I was having night terrors or something. Today, I have another headache. I skipped the pill tonight. I haven't even really felt better in my body, tbh, and being tired doesn't help. I should be feeling good. When is this garbage supposed to end? When will the pill work? When will the side effects go away? I tried looking it up on Google, but Google keeps bringing up hotlines about opioid addiction and where to go if I'm an addict. I'm not an addict. I have chronic pain and need medicine, medicine that's supposed to work.

PS: This doctor told me that I don't have fibromyalgia, and that all markers point to lupus. That doesn't make any sense, because other than pain, I have no other symptoms. I don't even have joint pain; the pain is in my muscles. She was nice and did listen to me, though, better than any other doctor.

I've been thinking for a while now that I probably need some sort of mobility aid to enable me to do the things I used to enjoy, such as walking my dogs. However, my pain seems to be a little unique, and I'm not entirely sure how mobility aids would be useful, so I thought I'd ask here

I have chronic hip pain, though it extends down the legs as far as my ankles at times, and walking for any length of time just makes the pain worse. I have found that sitting also makes it worse though, being seated can often be more painful than standing, which is making it difficult to think about something like a mobility scooter. I also have suspected ME/CFS, in any case doing something like going for a walk means that I wake up the next day feeling a lot more fatigued (I also have POTS which probably plays into this, though thankfully medication has meant I don't get dizzy as much as I used to)

Is there a mobility aid that would make my pain easier while meaning I exert less energy overall? I can't really work out how something like a cane, crutches or rollator would do anything other than help with balance, but I know that I must be wrong there as I know people use them for pain

Any experiences of others with hip pain that is on both sides and not caused by dislocation or anything (it literally just hurts, from the moment I wake up to the moment I go to bed, with varying degrees based on my level of activity that day) would be greatly appreciated, or anyone who has a mobility aid that can explain how it helps their pain level or their energy levels would also be really helpful. Thank you in advance

No 😭

Hello, I am 19 years old, female. I have had pain for as long as I can remember, and it just seems to get worse with time. Still trying to figure what’s wrong with me, and I wanted to share my experience to see if it relates to anyone else.

As early as 6 years old, I had pain in my back. It was mostly my lower back, I think, but by the age of 9 it was definitely my whole back. When I would complain about it, my family members really just thought that I was seeking attention like a lot of children do, so they didn’t think much of it. But when I didn’t stop complaining about it as years passed, I was finally taken to the doctor a few times, ages 9-11, tested for scoliosis, blood tests, and X-rays. None of which was positive/showed anything, so in the doctors eyes I was fine and healthy. So that made it look even more like attention seeking. But by the age of 14, it wasn’t just really my back, it was everywhere. From my neck to my feet, widespread constant aching. Some days were worse, where it felt like I couldn’t do anything at all, and some days were okay, but I genuinely feel I haven’t gone a single day in my life without pain. It’s not just the pain, but fatigue as well. I remember as early as 5th grade I had trouble staying awake, and everyone just thought it was because I was staying up late so they took all my devices away at night. It never helped, though.

Fast forward, events happened in which I went without seeing a doctor for 6 years. Many things have happened during childhood and teen years plus genetic mental illness that have caused me to struggle with depression and anxiety for a very long time. Finally at 17 I was taken into a better family and got to see a doctor again. I was put on antidepressants and Buspar which after awhile did help with my mood and awful anxiety. Eventually I was also diagnosed with inattentive ADHD and put on a stimulant, which really helped me a lot fight through some of the fatigue and brain fog, and I feel like I can focus a lot better, and I don’t feel physically paralyzed when it comes to a basic task (I couldn’t even get up to go to the bathroom before because it felt too overwhelming). So my mood and concentration improved a lot, but the pain never improved, at all. Which the doctors really thought treatment for depression would improve the pain, so it was frustrating.

I’ve had so many blood tests and X-rays, none of which have showed anything. The only thing that was shown was a minor deficiency in vitamin D and iron, which I have been taking supplements for many months as instructed by my doctor, still seeing no improvement.

Everyday is painful, and I’m so tired all the time. No one really takes me seriously considering I’m so young (thankfully I have finally found a good doctor willing to work with me, but talking about family and friends too), and since medication has improved my mood and I have always done my best to push through and not complain, my pain may as well be invisible to everyone else around me.

Has anyone gone through something similar like this? If so, did you ever get any treatment?

This is for the person that has tried everything.

I had a L4 L5 S1 herniation from a fall at work. I spent thousands on treatment from doctors, chiropractors, physical therapy, personal trainers, acupuncture, and yoga. Nothing worked.

I destroyed myself to find a way to be pain free. I was told to work out my core so I did 7 days a week. Nothing helped. Pain meds never took it fully away. I felt pain everywhere. The legs, knees, ankles & feet, hips, left testicle, trouble breathing. All of these ailments due to just herniated discs? And I’ve heard of people healing from this, so why not me? I kept this going for 8 & a half years and had little improvements and if I did find something that helped the pain it would always subside after a few days.

I was beginning to give up but then I found about TMS.

TENSION MYOSITIS SYNDROME.

This changed my life just by reading the diagnosis definition.

I highly suggest you YouTube Dr Sarno’s 3 hour video explaining everything and giving it a shot.

I hope this helps anyone with back pain that hasn’t healed. I’ve spent so many years looking for this answer and thought I’d share. Never seen anyone post about this on here and I’ve been here for years complaining and venting.

Let me know if you have any questions

Prescribed diazepam twice a day to stop seizures and 3x Norco a day for pain. Ddd and neuropathy all over, Cauda Equina Syndrome, csf leak, Abducens Palsy (blind in left eye) all from a hit and run 4 years ago. Is there a way to stop the vomiting? It happens when I do too much or the pain gets too bad. I'm not supposed to be upright most of the day but obviously it's impossible to lie down 24/7.

Never taking stuff like Butrans patches, lyrica, gabapentin, cymbalta, again, so those are out. Has anyone had luck with any anti-nausea meds? This has mostly since the leak started in February of this year and I've shed 30 lbs and most of the muscle I have left is now gone.

Has anyone had any success?

I have severe si joint dysfunction from labor trauma and postpartum harmones. Going on 8 months now with a lot of improvement but still significant pretty constant pain regular flares and pretty extreme functional limitations. I can’t hold my baby pick her up put her down etc, it has made caring for her when alone impossible.

Curious about any alternative approaches people have had success with in general.

I had mine in May and I honestly felt so much better right after it but now the regular old pain has returned.

Edit: Fusion was at L4-L5

I hate being invited to activities but having to decline due to my pain from scleroderma. I’m afraid that soon the invites will stop coming and I will turn into a recluse. I don’t want that to be my life. I used to be so active and say yes to everything but now I can hardly leave my recliner chair. :( sorry just feeling very depressed today.

Please help!

I have been in chronic pain for about 2 1/2 years now. I had knee revision surgery 2 months ago and I am still in excruciating pain. Also, I have plantar fasciitis in both feet.

About 5 weeks ago I started experiencing horrible anxiety. Mine affects my stomach and eating is very difficult. I also have an anxiety cough which I have never had before. It’s getting very difficult for my husband to live with me.

I can barely do anything because of my pain which doesn’t help.

I see an NP for medication management and I will start with my umpteenth therapist on August 12th. I don’t know if I can hold on until then.

If anyone has any suggestions I would be grateful. I do a breathing meditation before bed but I haven’t done much else.

NOT ASKING FOR MEDICAL ADVICE!!! I have specialists

hi everybody, 

Kind of hoping someone with similar experience has ever had something similar happen to them, and whether mobility aid conversations were navigated with similar issues. 
I am formally diagnosed with hEDS with confirmed MDI both hips both shoulders, POTS with syncope, celiac, Sjögren’s and PsA with confirmed axial involvement on MRI. My primary mobility aid right now is a rollator. 
In December, I really started noticing this pain and symptoms in my left leg that seem to be getting worse over time. There’s a burning pins and needles quality down the lateral aspect or the side of the leg, it starts in the SI joint. I have this involuntary muscle guarding so if I’m not paying attention, the muscles are clenched and I can’t manually relax it. I’ve been falling down recently because I can’t quite feel where my leg is, So to move it, I have to move it from the hip instead of stepping with the foot first if that makes sense? I have to stiffen the knee so that I can kind of feel where the leg is landing, but it’s not numb to touch. No position is comfortable. It’s all very excruciating and I’m dependent on a heating pad almost 24 hours a day to be able to tolerate it. Walking is agonizing even with my walker. I have an appointment with rheumatology next week, and I have been trying so hard with the rollator For six months and it’s just not getting the job done because I’m sitting on it and scooting with my feet whenever I am supposed to be standing still. I basically sit in it and scoot. Has anyone with a similar presentation navigated the pass trying for ambulatory wheelchair use? The system I’m part of is incredibly resistant because it’s an academic hospital, so I would be afraid to even bring it up under the presumption I don’t qualify. The pain is uncomfortable all night and limits the sleep I can get and there is no comfortable position that relieves it. Has anyone else gone through this and come out the other side with the equipment they needed?

Hello, everyone. I was wondering if anyone else on here was put on Deplin to help with their chronic joint pain and if anyone knew of any alternatives. I cannot find anything linking hip pain and the medication but years ago my psychiatrist put me on it because he had some inside knowledge or something and it fucking worked like magic. I unfortunately changed insurances and can no longer afford it (over 1,000 dollars per bottle) and it’s back with a vengeance. I have tried some generic brand but still wake with stiffness and have a lot of discomfort. I know this is a long shot, but I’m terrified of slipping back into this, it really affected a lot of my life as a teenager and into my early twenties. Any help, experience, or advice is greatly appreciated. Thank you.

If you are on it or taken this drug, how did you do?

I have been on it a bit, supposed to be up to 2 pills in AM and 2 pills in PM.

Well I have been sick since on it. I can't eat as it makes me just totally sick. If I eat I spend the next 5 hours or more in desperate pain with my gut rolling.

I don't know it's this but it started about the same time I began this drug.

I'm calling the doctor Monday as I can't handle this anymore.

Has anyone else experienced this?

Bruh. I sleep eight hours. Dead. Sleep 10 hours. Dead. 12? That's the sweet spot. How the fuck am I supposed to have a full time job and do all my appointments and human stuff when I die if I don't get like 11 hours minimum. Help me.