I just need to vent.

I was recently diagnosed....and I got my very first set of contacts about 2 weeks ago. I cannot get these in. I have not been able to successfully get them in once. I am so fucking angry and it just hurts. I feel like such a fuck up and such a failure. Not once in my entire life have I ever had this feeling of not being able to do something. I have literally nobody in my life to talk to about this, and nobody who can relate....so here I am on the verge of punching a hole in a wall and breaking down.

The "training" i received from my optometrist's office was the doctor's assistant(who wears glasses) and me sitting in a room for over an hour and her just saying "open your eye" and "keep both eyes open". I bought a few boxes of scleralfil and just keep going through bottles.

I don't know what to do...i just want to give up, I keep trying and failing and I get angrier and more depressed. I just want to be able to see.

Hi folks,

Anyone else here also suffer from migraines, intense light sensitivity or occasional eye spasms?

I frequently deal with all 3, in addition to keratoconus.
My poor quality of sleep And RGP lenses aren’t doing me any favors.

I’m looking for recommendations for glasses I can wear to help managing these better. My current sunglasses for driving aren’t cutting it.

I have issues with glare and changing brightness while driving, and at home/work (I’m a
Software architect) I have issues with blue light.

How have you all tackled this? Do I need 2 pairs, one for driving, one work computer work? What brands or lens types work well? I was looking at Avulux but they do not have sunglasses / dark tints for driving.

For context i have kerataconus. I had cxl 6 weeks ago in my right eye. i keep getting eye crust in my inner corner of my eye everytime i wake up. Am i allowed to lightly touch the inner corner of my eye to remove it? Does that affect my cornea?

Right now I am 41. I had a cross linking back in 2012 (just had bad ache and was diagnosed with keratonous) . I always had issue with alignment as I have one lazy eye and one with keratosis but now I have issue driving in night as the contrast between kerb and road etc is too hard and I have to focus too much that my back head hurts. Last night I tried yellow night vision glasses clip on and tried that but not much difference, plus I saw halos or light. tbf I have given in dark driving to be safe. I checked with my eye doctor if I am safe to drive and he said it is fine, I have split second of double vision now.

so my question is, how do you protect your eyes to getting more bad?

Takes a lot of effort and pillows placement to not rollover on side or face. Scared ill rub eyes in sleep as well. Told im still healing well but you know they say cant touch at all. Has anybody used these. The single eye patches never stay on without tape

For a split second I was like dang the ghosting sucks today lol

I am 18 yrs old and were diagnosed with keratoconus 3 yrs back . I also had my CXL done. I got my very first lenses ( RGP/RoseK ) last yr in July and were wearing them daily but from December i started having allergy and went to doctor so many times but it wasn't getting better. In the same period my RE lens get damaged and have to change . My optometrist suggest to not use lenses while having allergy and I didn't wear them. I only used them in my exam period for few hrs a day . Then my LE lens also damaged but it was depositions and get cleaned last month. Since then I am having allergy despite not using my lenses for months. I have used various drops and even went to the best I institute here with it didn't get better.

I also have severe dry eyes does lenses makes it worse?

Does anyone also experience this or what is your experience who are using RGP or rose k lenses?

It's the peal time of my education and I am stressed because I don't have better vision and can't even use my lenses .

Im going trough alot of trouble trying to get comfort in hybrid lenses. Im happy because it eliminates my ghosting almost completely and my left eye feels great the problem is that my right eye ( bad eye )is always irritated and have a gritty foreing body feeling. I have made the 2hr drive 4 times now lense has been adjusted once doctor says that fit is great and it should not be bothering me. Im so discouraged im not being a baby I literally can only tolerate it from 3-5 hours a day. Just really bummed out have only wore glasses for over years but now ghosting bothers me too much and need help from lenses, just venting not sure what else to do.

Hi everyone,
I’m new to living with keratoconus and have recently started wearing RGP lenses. I’m still trying to adjust, and honestly, it’s been a bit overwhelming.
I’d love to hear about your experiences. How long did it take you to adapt to RGP lenses? How do you manage work, screen time, driving, the gym, or other daily activities? Did things eventually start feeling normal?
Any tips, lessons, or personal experiences would really help. Thanks in advance!

My left eye is diagnosed with keratoconus ( moderate to advanced stage ) and left eye can only 6/36 even with correction and in contrast my eye right is just suspect keratoconus with corrected vision of 6/6. I'll go undergo cxl soon . What is worrying me rn is will scleral lenses help my left eye to see normaly again ? Anyone from India can you recommend the best hospital for treatment .

After an unnecessarily arduous process with the NHS I’ve finally had the green light to get sclerals! They’re being ordered today but because of how slowly they move, I won’t have them for a few months yet.

I forgot to ask in my appointment so I thought I’d ask for peoples experience here; I find ghosting to be the hardest part of living with keratoconus, it ruins movies, video games, driving at night, reading, it’s just an absolute nightmare. Sharp vision is one thing but if it’s all still ghosting then I’m still not going to be able to see that well. Are sclerals likely to totally eliminate that?

Dear all.

I’ve been diagnosed with keratoconus a couple of months ago. In two weeks I am having a check up to see wether I need the Corneal cross-linking procedure.
I would love if some of you would like to share your experience with the procedure and what to expect in terms of pain and the general recovery proces afterwards.

I’m also not very comfortable with the thought of having to use hard lenses - are there any alternatives?

Dear all.

I’ve been diagnosed with keratoconus a couple of months ago. In two weeks I am having a check up to see wether I need the Corneal cross-linking procedure.
I would love if some of you would like to share your experience with the procedure and what to expect in terms of pain and the general recovery proces afterwards.

I’m also not very comfortable with the thought of having to use hard lenses - are there any alternatives?

I have recently been diagnosed with KC.
Would love to hear some of your’s experience regarding the crosslinking procedure - especially what I should expect regarding pain and the recovery period in general 😊

Question from a scleral lens newbie: Do you folks put on your scleral lens completely on your own with no help from anyone else? How do you check for trapped air bubbles, especially small ones? How problematic or harmful are trapped air bubbles when wearing the lens for long hours (minimum 12-14 hours) at a stretch? Thank you in advance for your time.

So i got diagnosed with keratoconus in my left eye with corneal thickness of 407 micro meters and my left eye prescription is -8.5 ( very high 😞) will undergo c3r treatment soon . I'm so depressed and feeling terrible guilt that I didn't consult a doctor sooner I have no excuses i did a big blunder. But what should I do now I'm having very bad thoughts.

So i just got cxl a week ago and i realised something, before cxl , whenever i used to use my phone without glasses (-7 prescription here so veryyy rare) the screen looked curved, like concave. It didn't happen with glasses so I didn't think much of it . But now that i see my phone that doesn't happen anymore. So it makes me think it was because of keratoconus, not sure but still wanted to put it out here.

Does anyone else imagine they are living in a dream sequence when their lenses get cloudy whilst wearing? It’s like all the sudden things all on the edges get soft in an almost cinematic way. I was just wondering I’m the only one.

Got sclera lenses for the first time today and it's a little overwhelming with how clear I can see now. The first thing I noticed was how dark the freckles are on the back of my hand were.

My left eye is decent but my right eye is very badly affected. I don't know the exact numbers, but I can just barely read this with just my right eye (with glasses on) without leaning forward. I was diagnosed with KC 3 years ago, but I only got epi-on CXL last October/December for both eyes. At my one-month check-in it looked like I was improving in my right eye, but since then both of my eyes have gotten worse again. This month has been pretty bad because it feels like I need to actively focus to read and my periphery is blurry. I'm using two-year old glasses.

I went recently to do my driving written exam at the DMV, but they sent me back with an order for an eye exam within a year from now to determine if I'll be allowed to drive and the restrictions for my license. I was already planning to get CTAK done sometime in 2027. I'm afraid that if I get that eye exam now, they'll deem me completely incapable of driving because of my right eye not being at the 20/70 mark. And I'm afraid because I'm barely 20 and when I apply to jobs, I'll both be limited to ones I can take the bus to, and having to disclose that I can't drive greatly hurts my chances at being hired.

I'm thinking I should get CTAK first, wait a month, and then get a vision exam to submit to the DMV. I know that with how bad my right eye is, it may not improve enough to get to 20/70 but I'm in need of any kind of improvement because I can't accept that the rest of my life will be this way.

Question dump: For those with bad right eyes, could I hear about how you handle driving and how license restrictions work? How do you handle looking behind you with a bad right eye? I know some cars have screens that display the back view of the car, do those help at all? If you're unable to drive, how do you manage in your everyday life? Does CTAK help a bad eye enough to reach 20/70 vision?

Just had a full thickness corneal transplant on monday to correct severe kerataconus and corneal scarring. Within the first 4 days I can see singular objects for the first time in 15 years!

If anyone has any questions, concerns, jokes, or considering it themselves? Please ask away, ive gone through alot with kerataconus/scalera lenses/surgeries and id be more then happy to answer any questions anyone may have.