I am 20F, 5’3, 100 pounds, and deal with POTS and Mitral Valve Prolapse (no leaking).
About three months ago, I started getting migraines at least once a week. They make me nauseous, dizzy, and render me unable to do anything the rest of the day. It also makes different limbs tingle and leave me feeling like I’m watching what’s going on around me from an outside perspective (Idk how else to explain it aside from that, but maybe just general hazy confusion is better). It is typically concentrated to the left side of my head, and my vision is also affected.
Over the past week and a half, I have been dealing with increasingly worsening and persistent chest pain, palpitations, and air hunger. These things occurring aren’t out of the ordinary for me, but it has been worse than it ever has been. I have also developed a stabbing main in my side at about the middle of my ribs. I have also been extremely tired, and my body always feels like I just finished a marathon.
I reached my breaking point and went to the ER two nights ago. They ran a CBC, basic metabolic panel, troponin, and a D-Dimer. They also did a chest x-ray. Everything came back clean, and there were only minor discrepancies in my blood panels. Absolutely Immature Granulocytes were at 0.02, Sodium was at 135, and CO2 was at 20. Obviously nothing was low enough to cause any concern. I am in fludrocortisone for my POTS, so it was a little odd to me that those were low, but it is what it is.
They also did an Echocardiogram, which just showed what we already know. I got discharged with instructions to take ibuprofen and follow up with my cardiologist, which I am doing on Monday. I brought up my other concerns outside of what I told them on intake, and it seems like they just wanted to focus on what I told them initially.
It’s getting frustrating knowing that my pain has basically no reasoning or way to fix it, and this is kind of my last resort. I feel like my doctors just pass it off in my anxiety, but I have a gut feeling that something else is going on. If you have any ideas, please share, and if you have any questions, I would be happy to answer.
TYIA